Final project report: Social media for carriers of hereditary cancer syndromes

The project aimed to investigate how everyday social media use may influence how hereditary cancer risk is understood in the public domain and experienced by carriers and their families. Ultimately, its findings help us understand how this influence can be harnessed for the good.

This final report draws on social media analysis, interviews with carriers of hereditary cancer syndromes (BRCA and Lynch syndrome-related), and a stakeholder workshop. 

Our findings highlight both the opportunities and challenges social media present. Here, we pair them with practical recommendations for creators, social media users, healthcare professionals, and platforms. (We do not provide any medical suggestions!)